Patients’ organisations are defined as not-for profit organisations which are patient focused and represent and/or support the needs of patients and/or caregivers. Patients and/or carers represent a majority of members in governing bodies.

In addition to supporting the activities of patient organisations, working with them can help Actavis have a better understanding of the specific needs of patients and how we can better support these needs.

The industry recognises that transparency is an important means of building and maintaining confidence. Actavis UK Limited abides by the principles of The Association of the British Pharmaceutical Industry (ABPI) and in line with this; we must declare a list of patient organisations to which we provide financial support and/or significant indirect/ non-financial support, including a description of the nature of the support and its monetary value.

Wherever possible, we confirm the description of the organisation, the activities and any funding received with the patient organisation.

The activity types you will find described are: Charitable donation

The Pituitary Foundation

The Pituitary Foundation is a national support and information organisation for pituitary patients, their families, friends and carers.

2016 Charitable Donation, from Actavis to Pituitary Foundation to enable the Pituitary Foundation to deliver the following;

• £14,000 towards their 2016 conference which took place on 23rd April 2016 in Leeds. £14,000 represents ~61% of the total conference cost
• £10,000 to fund 2 x editions of their Pituitary Life members magazine

Total funding from Actavis received by The Pituitary Foundation in 2016 = £24,000

Following the transfer of funding Actavis had no further involvement and didn’t receive anything from the Pituitary Foundation in return

Addison’s Disease Self Help Group

The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. 

2016 Charitable Donation, from Actavis to ADSHG to enable the ADSHG to deliver the following;

• £10,000 to fund an editorial contractor, this part of the funding will be used to pay the contractors fees
• £10,000 to fund a web master contractor, this part of the funding will be used to pay the contractors fees
• £5,000 to offer a medical research grant that supports medical research projects that will advance good clinical practice in the management of Addison’s disease

Total funding from Actavis received by Addison’s Disease Self-Help Group in 2016 = £25,000

Following the transfer of funding Actavis had no further involvement and didn’t receive anything from the ADSHG in return